↓ Skip to main content

Family burden in inherited ichthyosis: creation of a specific questionnaire

Overview of attention for article published in Orphanet Journal of Rare Diseases, February 2013
Altmetric Badge

Mentioned by

twitter
2 X users

Citations

dimensions_citation
44 Dimensions

Readers on

mendeley
44 Mendeley
You are seeing a free-to-access but limited selection of the activity Altmetric has collected about this research output. Click here to find out more.
Title
Family burden in inherited ichthyosis: creation of a specific questionnaire
Published in
Orphanet Journal of Rare Diseases, February 2013
DOI 10.1186/1750-1172-8-28
Pubmed ID
Authors

Hélène Dufresne, Smail Hadj-Rabia, Cécile Méni, Vincent Sibaud, Christine Bodemer, Charles Taïeb

Abstract

The concept of individual burden, associated with disease, has been introduced recently to determine the "disability" caused by the pathology in the broadest sense of the word (psychological, social, economic, physical). Inherited ichthyosis belong to a large heterogeneous group of Mendelian Disorders of Cornification. Skin symptoms have a major impact on patients' Quality of Life but little is known about the burden of the disease on the families of patients.

X Demographics

X Demographics

The data shown below were collected from the profiles of 2 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 44 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 44 100%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 8 18%
Student > Bachelor 7 16%
Student > Master 5 11%
Other 4 9%
Researcher 3 7%
Other 5 11%
Unknown 12 27%
Readers by discipline Count As %
Medicine and Dentistry 11 25%
Nursing and Health Professions 6 14%
Psychology 4 9%
Agricultural and Biological Sciences 2 5%
Biochemistry, Genetics and Molecular Biology 2 5%
Other 6 14%
Unknown 13 30%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 17 February 2013.
All research outputs
#15,263,666
of 22,696,971 outputs
Outputs from Orphanet Journal of Rare Diseases
#1,776
of 2,600 outputs
Outputs of similar age
#197,738
of 307,673 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#74
of 96 outputs
Altmetric has tracked 22,696,971 research outputs across all sources so far. This one is in the 22nd percentile – i.e., 22% of other outputs scored the same or lower than it.
So far Altmetric has tracked 2,600 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 7.4. This one is in the 23rd percentile – i.e., 23% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 307,673 tracked outputs that were published within six weeks on either side of this one in any source. This one is in the 25th percentile – i.e., 25% of its contemporaries scored the same or lower than it.
We're also able to compare this research output to 96 others from the same source and published within six weeks on either side of this one. This one is in the 15th percentile – i.e., 15% of its contemporaries scored the same or lower than it.