@DrNeenaJha 💯I too, endeavour to teach this, present a simple case requiring breadth of C.reasoning,work up,comprehensive assessment,consideration of ref flags,rare diseases ‘exclusion of DDx. ‘We must be ready to think again and look out for the horse wi
@KatKallen @scenequeenrocks That's true for pretty much every rare disease. Why joining advocacy forces is so important. This paper on using the Zebra recognition to describe all rare disease diagnosis problems predates any EDS specific use I can quick f
2016 Zebra Rare Disease reference, in research publication. Using it to refer to difficulty with all rare disease diagnosises ain't new. What most of us have in common is misdiagnosis (and sometimes mistreatment) after misdiagnosis. And why we advocate. h
@azy_cheese @olireiv @purrrmeowpurrr @ekverstania @obrerx In English, zebras are people with rare diseases. I don't think any equivalent to the French notion of zebra exists in English. https://t.co/XdqmMMJEGt