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‘I'm still here, I'm alive and breathing’: The experience of Black Americans with long COVID

Overview of attention for article published in Journal of Clinical Nursing, May 2023
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About this Attention Score

  • In the top 5% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (95th percentile)
  • High Attention Score compared to outputs of the same age and source (98th percentile)

Mentioned by

blogs
1 blog
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77 X users

Readers on

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26 Mendeley
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Title
‘I'm still here, I'm alive and breathing’: The experience of Black Americans with long COVID
Published in
Journal of Clinical Nursing, May 2023
DOI 10.1111/jocn.16733
Pubmed ID
Authors

Rachel S. Bergmans, Keiyana Chambers‐Peeple, Christine Yu, Lillian Z. Xiao, Riley Wegryn‐Jones, Allie Martin, Samantha Dell'Imperio, Deena Aboul‐Hassan, David A. Williams, Daniel J. Clauw, Melissa DeJonckheere

Abstract

In this study, we aimed to characterize the impact of long COVID on quality of life and approaches to symptom management among Black American adults. As a novel condition, qualitative evidence concerning long COVID symptoms and their impact on quality of life can inform the refinement of diagnostic criteria and care plans. However, the underrepresentation of Black Americans in long COVID research is a barrier to achieving equitable care for all long COVID patients. We employed an interpretive description study design. We recruited a convenience sample of 15 Black American adults with long COVID. We analysed the anonymized transcripts from race-concordant, semi-structured interviews using an inductive, thematic analysis approach. We followed the SRQR reporting guidelines. We identified four themes: (1) The impact of long COVID symptoms on personal identity and pre-existing conditions; (2) Self-management strategies for long COVID symptoms; (3) Social determinants of health and symptom management; and (4) Effects on interpersonal relationships. Findings demonstrate the comprehensive ramifications of long COVID on the lives of Black American adults. Results also articulate how pre-existing conditions, social risk factors, distrust due to systemic racism, and the nature of interpersonal relationships can complicate symptom management. Care approaches that support access to and implementation of integrative therapies may be best suited to meet the needs of long COVID patients. Clinicians should also prioritize eliminating patient exposure to discrimination, implicit bias, and microaggressions. This is of particular concern for long COVID patients who have symptoms that are difficult to objectively quantify, such as pain and fatigue. While patient perspectives and experiences were the focus of this study, patients were not involved with the design or conduct of the study, data analysis or interpretation, or writing the manuscript.

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X Demographics

X Demographics

The data shown below were collected from the profiles of 77 X users who shared this research output. Click here to find out more about how the information was compiled.
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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 26 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 26 100%

Demographic breakdown

Readers by professional status Count As %
Unspecified 1 4%
Librarian 1 4%
Student > Doctoral Student 1 4%
Student > Bachelor 1 4%
Student > Master 1 4%
Other 1 4%
Unknown 20 77%
Readers by discipline Count As %
Medicine and Dentistry 2 8%
Unspecified 1 4%
Arts and Humanities 1 4%
Psychology 1 4%
Pharmacology, Toxicology and Pharmaceutical Science 1 4%
Other 0 0%
Unknown 20 77%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 53. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 11 May 2023.
All research outputs
#868,722
of 26,729,497 outputs
Outputs from Journal of Clinical Nursing
#125
of 5,723 outputs
Outputs of similar age
#18,490
of 419,643 outputs
Outputs of similar age from Journal of Clinical Nursing
#1
of 88 outputs
Altmetric has tracked 26,729,497 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 96th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 5,723 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 7.4. This one has done particularly well, scoring higher than 97% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 419,643 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 95% of its contemporaries.
We're also able to compare this research output to 88 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 98% of its contemporaries.