@pjgreen @kemenkhaus We can develop all the outcome measures we like but unless too short trials/massive under powering are addressed we will continue failure cycle. Current measures are ‘ok’ enough especially with tuning as shown by this recent on going E
RT @MND_RIA: A very technical paper - but important study; Improving the measurement properties of the Amyotrophic Lateral Sclerosis Functi…
A very technical paper - but important study; Improving the measurement properties of the Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R): deriving a valid measurement total for the calculation of change https://t.co/bOH8q7t6M9 1/
RT @AmmarAlChalabi: The ALSFRS-R is a widely used measure of function in #ALS #MND. It has problems. For example, loss of a point on the sc…