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The contributions of family care-givers at end of life: A national post-bereavement census survey of cancer carers’ hours of care and expenditures

Overview of attention for article published in Palliative Medicine, February 2017
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About this Attention Score

  • In the top 5% of all research outputs scored by Altmetric
  • Among the highest-scoring outputs from this source (#40 of 1,396)
  • High Attention Score compared to outputs of the same age (97th percentile)
  • High Attention Score compared to outputs of the same age and source (93rd percentile)

Mentioned by

news
3 news outlets
blogs
1 blog
twitter
99 tweeters
facebook
3 Facebook pages

Citations

dimensions_citation
29 Dimensions

Readers on

mendeley
48 Mendeley
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Title
The contributions of family care-givers at end of life: A national post-bereavement census survey of cancer carers’ hours of care and expenditures
Published in
Palliative Medicine, February 2017
DOI 10.1177/0269216317690479
Pubmed ID
Authors

Christine Rowland, Barbara Hanratty, Mark Pilling, Bernard van den Berg, Gunn Grande

Abstract

Family members provide vital care at end of life, enabling patients to remain at home. Such informal care contributes significantly to the economy while supporting patients' preferences and government policy. However, the value of care-givers' contributions is often underestimated or overlooked in evaluations. Without information on the activities and expenditures involved in informal care-giving, it is impossible to provide an accurate assessment of carers' contribution to end-of-life care. The aim of this study was to investigate the contributions and expenditure of informal, family care-giving in end-of-life cancer care. A national census survey of English cancer carers was conducted. Survey packs were mailed to 5271 people who registered the death of a relative to cancer during 1-16 May 2015. Data were collected on decedents' health and situation, care support given, financial expenditure resulting from care, carer well-being and general background information. In all, 1504 completed surveys were returned (28.5%). Over 90% of respondents reported spending time on care-giving in the last 3 months of the decedent's life, contributing a median 69 h 30 min of care-giving each week. Those who reported details of expenditure (72.5%) spent a median £370 in the last 3 months of the decedent's life. Carers contribute a great deal of time and money for day-to-day support and care of patients. This study has yielded a unique, population-level data set of end-of-life care-giving and future analyses will provide estimates of the economic value of family care-givers' contributions.

Twitter Demographics

The data shown below were collected from the profiles of 99 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 48 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 48 100%

Demographic breakdown

Readers by professional status Count As %
Researcher 9 19%
Unspecified 8 17%
Student > Master 7 15%
Student > Ph. D. Student 5 10%
Student > Postgraduate 4 8%
Other 15 31%
Readers by discipline Count As %
Nursing and Health Professions 14 29%
Unspecified 11 23%
Medicine and Dentistry 10 21%
Social Sciences 5 10%
Economics, Econometrics and Finance 2 4%
Other 6 13%

Attention Score in Context

This research output has an Altmetric Attention Score of 94. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 27 January 2018.
All research outputs
#173,674
of 13,574,567 outputs
Outputs from Palliative Medicine
#40
of 1,396 outputs
Outputs of similar age
#7,513
of 257,302 outputs
Outputs of similar age from Palliative Medicine
#2
of 33 outputs
Altmetric has tracked 13,574,567 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 98th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 1,396 research outputs from this source. They typically receive a lot more attention than average, with a mean Attention Score of 20.0. This one has done particularly well, scoring higher than 97% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 257,302 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 97% of its contemporaries.
We're also able to compare this research output to 33 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 93% of its contemporaries.