Title |
Identifying Health Literacy and Health System Navigation Needs among Rural Cancer Patients: Findings from the Rural Oncology Literacy Enhancement Study (ROLES)
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Published in |
Journal of Cancer Education, June 2013
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DOI | 10.1007/s13187-013-0505-x |
Pubmed ID | |
Authors |
Ana P. Martinez-Donate, Julie Halverson, Norma-Jean Simon, Jeanne Schaaf Strickland, Amy Trentham-Dietz, Paul D. Smith, Rebecca Linskens, Xinyi Wang |
Abstract |
Rural residence is associated with disparities in cancer-related outcomes. Guided by the Chronic Care Model (CCM), the Rural Oncology Literacy Enhancement Study (ROLES) assessed health literacy and patient navigation needs among rural cancer patients. A mixed methods (qualitative and quantitative) approach was used, including: in-depth interviews, health literacy assessments, and phone surveys with cancer patients (N = 53) from 5 oncology clinics in rural Wisconsin; focus groups and self-administered surveys with staff (N = 41) in these clinics. Within four dimensions of the CCM (community resources, self-management support, delivery system design, and decision support), this study uncovered multiple unmet navigation needs, health literacy limitations, and barriers to quality cancer care. System-level implementation of patient navigation and health literacy best practices could contribute to improved cancer care and patient outcomes among rural populations. Further research identifying effective interventions that reduce cancer disparities among rural cancer patients is necessary. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 1 | 100% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 1 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 2 | 2% |
United Kingdom | 1 | <1% |
Switzerland | 1 | <1% |
Unknown | 113 | 97% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Ph. D. Student | 16 | 14% |
Researcher | 16 | 14% |
Student > Master | 15 | 13% |
Student > Bachelor | 12 | 10% |
Student > Postgraduate | 9 | 8% |
Other | 22 | 19% |
Unknown | 27 | 23% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 23 | 20% |
Nursing and Health Professions | 22 | 19% |
Social Sciences | 18 | 15% |
Psychology | 7 | 6% |
Agricultural and Biological Sciences | 4 | 3% |
Other | 11 | 9% |
Unknown | 32 | 27% |