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Multicentre consensus recommendations for skin care in inherited epidermolysis bullosa

Overview of attention for article published in Orphanet Journal of Rare Diseases, January 2014
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About this Attention Score

  • In the top 25% of all research outputs scored by Altmetric
  • High Attention Score compared to outputs of the same age (80th percentile)
  • High Attention Score compared to outputs of the same age and source (84th percentile)

Mentioned by

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7 tweeters
facebook
2 Facebook pages
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1 research highlight platform

Citations

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50 Dimensions

Readers on

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126 Mendeley
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Title
Multicentre consensus recommendations for skin care in inherited epidermolysis bullosa
Published in
Orphanet Journal of Rare Diseases, January 2014
DOI 10.1186/1750-1172-9-76
Pubmed ID
Authors

May El Hachem, Giovanna Zambruno, Eva Bourdon-Lanoy, Annalisa Ciasulli, Christiane Buisson, Smail Hadj-Rabia, Andrea Diociaiuti, Carolina F Gouveia, Angela Hernández-Martín, Raul de Lucas Laguna, Mateja Dolenc-Voljč, Gianluca Tadini, Guglielmo Salvatori, Cristiana De Ranieri, Stephanie Leclerc-Mercier, Christine Bodemer

Abstract

Inherited epidermolysis bullosa (EB) comprises a highly heterogeneous group of rare diseases characterized by fragility and blistering of skin and mucous membranes. Clinical features combined with immunofluorescence antigen mapping and/or electron microscopy examination of a skin biopsy allow to define the EB type and subtype. Molecular diagnosis is nowadays feasible in all EB subtypes and required for prenatal diagnosis. The extent of skin and mucosal lesions varies greatly depending on EB subtype and patient age. In the more severe EB subtypes lifelong generalized blistering, chronic ulcerations and scarring sequelae lead to multiorgan involvement, major morbidity and life-threatening complications. In the absence of a cure, patient management remains based on preventive measures, together with symptomatic treatment of cutaneous and extracutaneous manifestations and complications. The rarity and complexity of EB challenge its appropriate care. Thus, the aim of the present study has been to generate multicentre, multidisciplinary recommendations on global skin care addressed to physicians, nurses and other health professionals dealing with EB, both in centres of expertise and primary care setting.

Twitter Demographics

The data shown below were collected from the profiles of 7 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 126 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Spain 1 <1%
United States 1 <1%
Brazil 1 <1%
Unknown 123 98%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 24 19%
Researcher 20 16%
Student > Master 17 13%
Other 14 11%
Student > Postgraduate 11 9%
Other 24 19%
Unknown 16 13%
Readers by discipline Count As %
Medicine and Dentistry 57 45%
Nursing and Health Professions 23 18%
Agricultural and Biological Sciences 7 6%
Psychology 6 5%
Biochemistry, Genetics and Molecular Biology 5 4%
Other 8 6%
Unknown 20 16%

Attention Score in Context

This research output has an Altmetric Attention Score of 6. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 12 July 2018.
All research outputs
#3,230,232
of 14,414,127 outputs
Outputs from Orphanet Journal of Rare Diseases
#363
of 1,590 outputs
Outputs of similar age
#37,780
of 189,366 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#7
of 44 outputs
Altmetric has tracked 14,414,127 research outputs across all sources so far. Compared to these this one has done well and is in the 77th percentile: it's in the top 25% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 1,590 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 7.3. This one has done well, scoring higher than 76% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 189,366 tracked outputs that were published within six weeks on either side of this one in any source. This one has done well, scoring higher than 80% of its contemporaries.
We're also able to compare this research output to 44 others from the same source and published within six weeks on either side of this one. This one has done well, scoring higher than 84% of its contemporaries.