Title |
“Making My Own Decisions Sometimes”: A Pilot Study of Young Adult Cancer Survivors’ Perspectives on Medical Decision-Making
|
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Published in |
Journal of Cancer Education, July 2017
|
DOI | 10.1007/s13187-017-1256-x |
Pubmed ID | |
Authors |
L. Aubree Shay, Susanne Schmidt, Stephanie D. Cornell, Helen M. Parsons |
Abstract |
This study aimed to provide a better understanding of the medical decision-making preferences and experiences of young adult survivors of pediatric, adolescent, and young adult cancers. We conducted key informant interviews and a cross-sectional mailed survey with young adult survivors (currently aged 18-39 years) of pediatric, adolescent, and young adult cancers in South Texas. Of the responding survivors, almost all wanted to be actively involved in medical decision-making, but preferences regarding family and doctor involvement varied. In open-ended responses, the most commonly reported concerns related to medical decision-making were feelings of uncertainty and fear of receiving bad news. Survivors reported that they desired more information in order to feel better about medical decision-making. Due to the variety of preferences regarding decision-making and who to include in the process, physicians should be prepared to ask and accommodate patients regarding their decision-making preferences. |
X Demographics
Geographical breakdown
Country | Count | As % |
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Canada | 1 | 100% |
Demographic breakdown
Type | Count | As % |
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Scientists | 1 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 33 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 6 | 18% |
Student > Bachelor | 5 | 15% |
Other | 3 | 9% |
Student > Ph. D. Student | 3 | 9% |
Student > Doctoral Student | 2 | 6% |
Other | 4 | 12% |
Unknown | 10 | 30% |
Readers by discipline | Count | As % |
---|---|---|
Psychology | 6 | 18% |
Nursing and Health Professions | 4 | 12% |
Medicine and Dentistry | 4 | 12% |
Social Sciences | 2 | 6% |
Immunology and Microbiology | 1 | 3% |
Other | 4 | 12% |
Unknown | 12 | 36% |