Title |
Returning individual research results for genome sequences of pancreatic cancer
|
---|---|
Published in |
Genome Medicine, May 2014
|
DOI | 10.1186/gm558 |
Pubmed ID | |
Authors |
Amber L Johns, David K Miller, Skye H Simpson, Anthony J Gill, Karin S Kassahn, Jeremy L Humphris, Jaswinder S Samra, Katherine Tucker, Lesley Andrews, David K Chang, Nicola Waddell, Marina Pajic, Australian Pancreatic Cancer Genome Initiative, John V Pearson, Sean M Grimmond, Andrew V Biankin, Nikolajs Zeps |
Abstract |
Disclosure of individual results to participants in genomic research is a complex and contentious issue. There are many existing commentaries and opinion pieces on the topic, but little empirical data concerning actual cases describing how individual results have been returned. Thus, the real life risks and benefits of disclosing individual research results to participants are rarely if ever presented as part of this debate. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 3 | 27% |
United Kingdom | 3 | 27% |
France | 1 | 9% |
New Zealand | 1 | 9% |
Australia | 1 | 9% |
Unknown | 2 | 18% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Scientists | 7 | 64% |
Members of the public | 4 | 36% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 2 | 5% |
United Kingdom | 1 | 3% |
Unknown | 35 | 92% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 11 | 29% |
Other | 5 | 13% |
Student > Master | 5 | 13% |
Student > Ph. D. Student | 4 | 11% |
Professor > Associate Professor | 4 | 11% |
Other | 5 | 13% |
Unknown | 4 | 11% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 11 | 29% |
Biochemistry, Genetics and Molecular Biology | 9 | 24% |
Agricultural and Biological Sciences | 6 | 16% |
Social Sciences | 3 | 8% |
Computer Science | 2 | 5% |
Other | 3 | 8% |
Unknown | 4 | 11% |