Title |
Legal, Practical, and Ethical Considerations for Making Online Patient Portals Accessible for All.
|
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Published in |
American Journal of Public Health, August 2017
|
DOI | 10.2105/ajph.2017.303933 |
Pubmed ID | |
Authors |
Courtney R Lyles, Jim Fruchterman, Mara Youdelman, Dean Schillinger |
Abstract |
Largely driven by the financial incentives of the HITECH Act's Meaningful Use program as part of federal US health care reform, access to portal Web sites has rapidly expanded, allowing many patients to view their medical record information online. Despite this expansion, there is little attention paid to the accessibility of portals for more vulnerable patient populations-especially patients with limited health literacy or limited English proficiency, and individuals with disabilities. We argue that there are potential legal mandates for improving portal accessibility (e.g., the Civil Rights and the Rehabilitation Acts), as well as ethical considerations to prevent the exacerbation of existing health and health care disparities. To address these legal, practical, and ethical considerations, we present standards and broad recommendations that could greatly improve the reach and impact of portal Web sites. (Am J Public Health. Published online ahead of print August 17, 2017: e1-e4. doi:10.2105/AJPH.2017.303933). |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 21 | 70% |
Canada | 3 | 10% |
Australia | 1 | 3% |
Unknown | 5 | 17% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 19 | 63% |
Scientists | 7 | 23% |
Practitioners (doctors, other healthcare professionals) | 3 | 10% |
Science communicators (journalists, bloggers, editors) | 1 | 3% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 96 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 13 | 14% |
Student > Doctoral Student | 12 | 13% |
Student > Ph. D. Student | 10 | 10% |
Researcher | 8 | 8% |
Lecturer | 7 | 7% |
Other | 26 | 27% |
Unknown | 20 | 21% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 19 | 20% |
Nursing and Health Professions | 19 | 20% |
Computer Science | 7 | 7% |
Social Sciences | 7 | 7% |
Business, Management and Accounting | 4 | 4% |
Other | 17 | 18% |
Unknown | 23 | 24% |