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Rare diseases and orphan drugs: Latvian story

Overview of attention for article published in Orphanet Journal of Rare Diseases, September 2014
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  • Good Attention Score compared to outputs of the same age (74th percentile)
  • Above-average Attention Score compared to outputs of the same age and source (55th percentile)

Mentioned by

policy
1 policy source
twitter
3 tweeters

Citations

dimensions_citation
12 Dimensions

Readers on

mendeley
65 Mendeley
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Title
Rare diseases and orphan drugs: Latvian story
Published in
Orphanet Journal of Rare Diseases, September 2014
DOI 10.1186/s13023-014-0147-z
Pubmed ID
Authors

Konstantins Logviss, Dainis Krievins, Santa Purvina

Abstract

BackgroundTen years have passed since Latvia became a Member State of the EU in 2004. As a result European regulations, including those related to rare diseases and orphan drugs, have been applied to Latvian legislative system. Orphan diseases have been recognized as a priority area for action in the public health system, though there are significant differences in the national healthcare services for rare diseases among the EU States. This study aims to determine situation in the field of rare diseases in Latvia and compare it with other European countries.MethodsWe used the national plan for rare diseases, EUCERD reports, Orphanet data, Latvian and European regulations, publicly available data from the state agencies, and directly contacted drug manufacturers and wholesalers.ResultsNational plan for rare diseases was developed and approved in 2013. Although there are no official designated centers of expertise as well as no specific register for rare diseases. Newborns are screened for only two disorders: phenylketonuria and congenital hypothyroidism. Currently 34 orphan drugs are available on Latvian market. Three medicines (8.8%) are included in the reimbursement drug list, all indicated for Ph¿+¿CML. 15 drugs (44.1%) were reimbursed within the framework of individual reimbursement system, and five drugs (14.7%) were provided within the program of medicinal treatment of rare diseases in children.ConclusionsMajority of orphan drugs authorized in the EU are not available in Latvia, moreover those drugs that are available are often not accessible because they are insufficiently reimbursed. Besides, approval of the national plan might be an important step towards improving situation in the field of rare diseases.

Twitter Demographics

The data shown below were collected from the profiles of 3 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 65 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Brazil 1 2%
Unknown 64 98%

Demographic breakdown

Readers by professional status Count As %
Student > Master 12 18%
Student > Doctoral Student 8 12%
Student > Postgraduate 6 9%
Student > Bachelor 6 9%
Researcher 5 8%
Other 13 20%
Unknown 15 23%
Readers by discipline Count As %
Medicine and Dentistry 18 28%
Pharmacology, Toxicology and Pharmaceutical Science 7 11%
Nursing and Health Professions 6 9%
Biochemistry, Genetics and Molecular Biology 4 6%
Agricultural and Biological Sciences 3 5%
Other 10 15%
Unknown 17 26%

Attention Score in Context

This research output has an Altmetric Attention Score of 5. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 11 February 2016.
All research outputs
#6,179,108
of 22,914,829 outputs
Outputs from Orphanet Journal of Rare Diseases
#802
of 2,630 outputs
Outputs of similar age
#63,591
of 249,924 outputs
Outputs of similar age from Orphanet Journal of Rare Diseases
#16
of 40 outputs
Altmetric has tracked 22,914,829 research outputs across all sources so far. This one has received more attention than most of these and is in the 72nd percentile.
So far Altmetric has tracked 2,630 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 7.5. This one has gotten more attention than average, scoring higher than 68% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 249,924 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 74% of its contemporaries.
We're also able to compare this research output to 40 others from the same source and published within six weeks on either side of this one. This one has gotten more attention than average, scoring higher than 55% of its contemporaries.