Title |
Living with pain: the experience of children and adolescents in palliative care*
|
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Published in |
Revista da Escola de Enfermagem da USP, August 2014
|
DOI | 10.1590/s0080-623420140000600010 |
Pubmed ID | |
Authors |
Camila Amaral Borghi, Lisabelle Mariano Rossato, Elaine Buchhorn Cintra Damião, Danila Maria Batista Guedes, Ellen Maria Reimberg da Silva, Silvia Maria de Macedo Barbosa, Rita Tiziana Polastrini |
Abstract |
A qualitative study was conducted with semi-structured interviews with the aim of understanding the experience of children and adolescents under palliative care when managing pain daily and how they describe the intensity, quality and location of pain. We used Piaget's theory of cognitive development as a theoretical framework and oral history as a methodological framework. We found four themes: describing pain; seeking a life closer to normality, despite pain and disease; using a variety of alternatives for pain control; and living with damaged physical appearance. Although pain is a limiting factor in the lives of children and adolescents, we found that they faced their daily pain and still had a life beyond pain and illness. In addition, we highlight the relevance of nurses' understanding that effective management of pain in children is essential for a normal life and less suffering. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 1 | 100% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 1 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Colombia | 1 | 1% |
Brazil | 1 | 1% |
Unknown | 65 | 97% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 13 | 19% |
Student > Bachelor | 10 | 15% |
Student > Doctoral Student | 9 | 13% |
Student > Postgraduate | 8 | 12% |
Researcher | 5 | 7% |
Other | 12 | 18% |
Unknown | 10 | 15% |
Readers by discipline | Count | As % |
---|---|---|
Nursing and Health Professions | 22 | 33% |
Medicine and Dentistry | 19 | 28% |
Psychology | 5 | 7% |
Social Sciences | 3 | 4% |
Biochemistry, Genetics and Molecular Biology | 2 | 3% |
Other | 3 | 4% |
Unknown | 13 | 19% |