6. Facilitating and/or sponsoring patient registries and natural history studies to aid in the development of treatments 7. Helping to ensure that patients have access to treatments Source: https://t.co/LW9KfMuWVQ
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RT @RarePOV: Principles for interactions with #biopharma companies: the development of guidelines for patient advocacy organizations in the…
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Principles for interactions with #biopharma companies: the development of guidelines for patient advocacy organizations in the field of #rarediseases discussed by @CONNEXIONhealth available at https://t.co/HIkzjAQ1K9 #BIOSummit18
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@CONNEXIONhealth - link to the: Principles for interactions with biopharmaceutical companies: the development of guidelines for patient advocacy organizations in the field of rare diseases. #BIOSummit18 https://t.co/BGc7Yo2NGn