Title |
The Ethics of General Population Preventive Genomic Sequencing: Rights and Social Justice
|
---|---|
Published in |
Journal of Medicine & Philosophy, January 2018
|
DOI | 10.1093/jmp/jhx034 |
Pubmed ID | |
Authors |
Clair Morrissey, Rebecca L Walker |
Abstract |
Advances in DNA sequencing technology open new possibilities for public health genomics, especially in the form of general population preventive genomic sequencing (PGS). Such screening programs would sit at the intersection of public health and preventive health care, and thereby at once invite and resist the use of clinical ethics and public health ethics frameworks. Despite their differences, these ethics frameworks traditionally share a central concern for individual rights. We examine two putative individual rights-the right not to know, and the child's right to an open future-frequently invoked in discussions of predictive genetic testing, in order to explore their potential contribution to evaluating this new practice. Ultimately, we conclude that traditional clinical and public health ethics frameworks, and these two rights in particular, should be complemented by a social justice perspective in order adequately to characterize the ethical dimensions of general population PGS programs. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 5 | 71% |
Norway | 1 | 14% |
Unknown | 1 | 14% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 3 | 43% |
Scientists | 3 | 43% |
Practitioners (doctors, other healthcare professionals) | 1 | 14% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 53 | 100% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 9 | 17% |
Student > Doctoral Student | 6 | 11% |
Student > Bachelor | 6 | 11% |
Researcher | 4 | 8% |
Other | 3 | 6% |
Other | 9 | 17% |
Unknown | 16 | 30% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 12 | 23% |
Biochemistry, Genetics and Molecular Biology | 6 | 11% |
Social Sciences | 3 | 6% |
Business, Management and Accounting | 2 | 4% |
Computer Science | 2 | 4% |
Other | 12 | 23% |
Unknown | 16 | 30% |