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Experiência de pessoas que vivem com a Síndrome de Berardinelli-Seip no Nordeste brasileiro

Overview of attention for article published in Ciência & Saúde Coletiva, February 2018
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Experiência de pessoas que vivem com a Síndrome de Berardinelli-Seip no Nordeste brasileiro
Published in
Ciência & Saúde Coletiva, February 2018
DOI 10.1590/1413-81232018232.16802017
Pubmed ID

Éverson de Brito Damasceno, Jakson Gomes de Figueiredo, Jean Marcel Bezerra França, Júlio Cesar Duarte Veras, Raul Elton Araújo Borges, Lucas Pereira de Melo


This paper analyzes the experience of people living with the Berardinelli-Seip Syndrome in the Brazilian Northeast. This qualitative study was developed with eleven informants, namely, nine people living with the syndrome and two mothers. Information was gathered using participant observation, social characterization and semi-structured interviews. Data were analyzed by means of a thematic coding technique. Two categories emerged: (1) 'the secret is to shut your mouth': food management in daily life; and (2) 'Ah, is it a transvestite?' body, gender, and masculinization. We concluded that, in the experience of the informants, their negotiations and creativity translated into strategies for food management that integrated tastes, values, habits, biomedical prescriptions and pleasures involved in commensality situations. Regarding corporeality, it has been shown that representations and experiences with the body show gender inequalities, insofar as women become privileged targets of stigmas, prejudices and discrimination in adult life.

Mendeley readers

The data shown below were compiled from readership statistics for 13 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 13 100%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 3 23%
Student > Master 2 15%
Other 1 8%
Professor 1 8%
Professor > Associate Professor 1 8%
Other 0 0%
Unknown 5 38%
Readers by discipline Count As %
Biochemistry, Genetics and Molecular Biology 3 23%
Medicine and Dentistry 3 23%
Nursing and Health Professions 2 15%
Unknown 5 38%