Patient reported outcome measures in rare diseases: a narrative review

Overview of attention for article published in Orphanet Journal of Rare Diseases, April 2018

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In the top 25% of all research outputs scored by Altmetric
High Attention Score compared to outputs of the same age (86th percentile)
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Volanesorsen for treating familial chylomicronaemia syndrome : Final evaluation determination committee papers

Cited by National Institute for Health and Care Excellence on 11 Sep 2020

The National Institute for Health and Care Excellence (NICE) in the UK provides national guidance and advice to improve health and social care.

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