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Exploration of Patient Characteristics and Quality of Life in Patients with Lipoedema Using a Survey

Overview of attention for article published in Dermatology and Therapy, May 2018
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Title
Exploration of Patient Characteristics and Quality of Life in Patients with Lipoedema Using a Survey
Published in
Dermatology and Therapy, May 2018
DOI 10.1007/s13555-018-0241-6
Pubmed ID
Authors

Jeroen R. M. Romeijn, Michette J. M. de Rooij, Loes Janssen, Herm Martens

Abstract

Lipoedema is a chronic disorder in which excessive fat distribution occurs predominantly from the waist down, resulting in a disproportion between the lower extremities and upper torso. Lipoedema is often not recognized, while patients experience pain and easy bruising. As a long-term condition, lipoedema has a massive effect on patients' lives and mental health. The aim of this study is to explore patient characteristics, quality of life, physical complaints and comorbidities in patients with lipoedema. A survey was conducted by email amongst lipoedema patients, consisting of informed consent and multiple questionnaires. The questionnaires included general patient characteristics, physical complaints, comorbidities, RAND-36 and EQ-5D-3L. Participants who responded to a message on the Dutch Lipoedema Association website were recruited. All lipoedema patients experience physical complaints, with pain (88.3 %) and easy bruising (85.9 %) as primary complaints. The diagnosis was mostly made by a dermatologist after visiting a mean of 2.8 doctors. Furthermore, mean time from onset until diagnosis was 18 years. Quality of life (59.3) was significantly lower than the Dutch female average (74.9; p < 0.001). Additionally, patients with comorbidities had significant lower quality of life (RAND 54.7, p < 0.001). Lipoedema patients often have severe complaints and experience lower quality of life regarding physical, emotional and social functioning. Additionally, comorbidities have a large impact on quality of life.

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Mendeley readers

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Geographical breakdown

Country Count As %
Unknown 51 100%

Demographic breakdown

Readers by professional status Count As %
Student > Bachelor 5 10%
Researcher 4 8%
Unspecified 3 6%
Student > Master 3 6%
Other 2 4%
Other 7 14%
Unknown 27 53%
Readers by discipline Count As %
Medicine and Dentistry 11 22%
Nursing and Health Professions 4 8%
Unspecified 3 6%
Psychology 2 4%
Economics, Econometrics and Finance 1 2%
Other 1 2%
Unknown 29 57%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 1. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 22 May 2018.
All research outputs
#18,620,820
of 23,067,276 outputs
Outputs from Dermatology and Therapy
#523
of 810 outputs
Outputs of similar age
#252,661
of 326,046 outputs
Outputs of similar age from Dermatology and Therapy
#9
of 13 outputs
Altmetric has tracked 23,067,276 research outputs across all sources so far. This one is in the 11th percentile – i.e., 11% of other outputs scored the same or lower than it.
So far Altmetric has tracked 810 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 9.4. This one is in the 3rd percentile – i.e., 3% of its peers scored the same or lower than it.
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We're also able to compare this research output to 13 others from the same source and published within six weeks on either side of this one. This one is in the 1st percentile – i.e., 1% of its contemporaries scored the same or lower than it.