Eight years after an international workshop on #MyotonicDystrophy patient registries: case study of a global collaboration for a rare disease https://t.co/aoxjvJtlGQ #DistrofiaMiotónica Tipo 1, #DM1 o Enfermedad de #Steinert
491 followers
225 followers
RT @DM1research: Int'l article: Eight years after an international workshop on myotonic dystrophy patient registries: case study of a globa…
739 followers
Int'l article: Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease. Registries have enrolled over 10,000 DM1 patients worldwide https://t.co/uTAv4eJ3NN