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Interviews with Irish healthcare workers from different disciplines about palliative care for people with Parkinson’s disease: a definite role but uncertainty around terminology and timing

Overview of attention for article published in BMC Palliative Care, February 2016
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  • Above-average Attention Score compared to outputs of the same age (54th percentile)

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Title
Interviews with Irish healthcare workers from different disciplines about palliative care for people with Parkinson’s disease: a definite role but uncertainty around terminology and timing
Published in
BMC Palliative Care, February 2016
DOI 10.1186/s12904-016-0087-6
Pubmed ID
Authors

Siobhan Fox, Alison Cashell, W. George Kernohan, Marie Lynch, Ciara McGlade, Tony O’Brien, Sean S. O’Sullivan, Suzanne Timmons

Abstract

An integrated palliative care approach is recommended in all life-limiting diseases, including Parkinson's disease (PD). However research shows that people with PD have unmet palliative care needs. The study aimed to explore multidisciplinary healthcare workers' (HCWs) views on palliative care for people with PD, identifying perceived barriers and facilitators. A qualitative design was used; data was analysed using Thematic Analysis. Semi-structured interviews were conducted with 30 HCWs, working either with people with PD or in a palliative care setting in Ireland. A number of perceived barriers were evident helping to account for the previously reported unmet palliative care needs in PD. A lack of education about PD and palliative care meant that HCWs were unsure of the appropriateness of referral, and patients and carers weren't equipped with information to seek palliative care. A lack of communication between PD and palliative care specialists was seen to impede collaboration between the disciplines. Uncertainty about the timing of palliative care meant that it was often not introduced until a crisis point, despite the recognised need for early planning due to increased prevalence of dementia. Most HCWs recognised a need for palliative care for people with PD; however several barriers to implementing a palliative care approach in this population need to be addressed. Implications for clinical practice and policy include the need for an integrated model of care, and education for all HCWs, patients, carers, and the public on both the nature of advanced PD, and the potential of palliative care in support of patients and their family members.

X Demographics

X Demographics

The data shown below were collected from the profiles of 5 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 165 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 165 100%

Demographic breakdown

Readers by professional status Count As %
Student > Master 29 18%
Student > Bachelor 24 15%
Researcher 16 10%
Student > Ph. D. Student 14 8%
Other 9 5%
Other 26 16%
Unknown 47 28%
Readers by discipline Count As %
Nursing and Health Professions 35 21%
Medicine and Dentistry 30 18%
Psychology 17 10%
Social Sciences 11 7%
Business, Management and Accounting 3 2%
Other 15 9%
Unknown 54 33%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 3. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 13 September 2016.
All research outputs
#12,883,195
of 22,844,985 outputs
Outputs from BMC Palliative Care
#854
of 1,253 outputs
Outputs of similar age
#181,625
of 400,364 outputs
Outputs of similar age from BMC Palliative Care
#31
of 34 outputs
Altmetric has tracked 22,844,985 research outputs across all sources so far. This one is in the 43rd percentile – i.e., 43% of other outputs scored the same or lower than it.
So far Altmetric has tracked 1,253 research outputs from this source. They typically receive more attention than average, with a mean Attention Score of 9.5. This one is in the 31st percentile – i.e., 31% of its peers scored the same or lower than it.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 400,364 tracked outputs that were published within six weeks on either side of this one in any source. This one has gotten more attention than average, scoring higher than 54% of its contemporaries.
We're also able to compare this research output to 34 others from the same source and published within six weeks on either side of this one. This one is in the 8th percentile – i.e., 8% of its contemporaries scored the same or lower than it.