Genética Médica Querétaro,
Few studies have examined whether the healthcare needs of people living with rare diseases are being met. This study explores…
Few studies have examined whether the healthcare needs of people living with rare diseases are being met. This study explores…
Australian adults living with a rare disease face considerable…
Survey of healthcare experiences of Australian adults living with rare diseases! "This study explores the experiences of…
The official journal of Orphanet, the international portal for rare diseases and orphan drugs, Orphanet Journal of Rare…