A cost of illness study evaluating the burden of Wolfram syndrome in the United Kingdom https://t.co/qrllV37qK2 #supportthecause #wolframsyndrome https://t.co/zINHhN5HR4
559 followers
1,730 followers
RT @findacure_fdn: We are so proud to have been involved in this study which evaluates the cost of an ultra-rare disease on the NHS: https:…
2,328 followers
Really happy to see this #WolframSyndrome paper published! @findacure_fdn do an absolutely incredible job researching and supporting #RareDisease patients, and it was an honour to be involved with the #MedicalWriting of this publication.
11,868 followers
We are so proud to have been involved in this study which evaluates the cost of an ultra-rare disease on the NHS: https://t.co/aJ0RRgiqiy. It is amazing to see the fruits of years worth of labour ☺️🙌 https://t.co/gve29JvrwE