A cost of illness study evaluating the burden of Wolfram syndrome in the United Kingdom

Overview of attention for article published in Orphanet Journal of Rare Diseases, July 2019

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A cost of illness study evaluating the burden of Wolfram syndrome in the United Kingdom https://t.co/qrllV37qK2 #supportthecause #wolframsyndrome https://t.co/zINHhN5HR4

04 Nov 2019

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RT @findacure_fdn: We are so proud to have been involved in this study which evaluates the cost of an ultra-rare disease on the NHS: https:…

01 Aug 2019

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Really happy to see this #WolframSyndrome paper published! @findacure_fdn do an absolutely incredible job researching and supporting #RareDisease patients, and it was an honour to be involved with the #MedicalWriting of this publication.

01 Aug 2019

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We are so proud to have been involved in this study which evaluates the cost of an ultra-rare disease on the NHS: https://t.co/aJ0RRgiqiy. It is amazing to see the fruits of years worth of labour ☺️🙌 https://t.co/gve29JvrwE

01 Aug 2019

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