Title |
Participation and quality of life in children with Duchenne muscular dystrophy using the International Classification of Functioning, Disability, and Health
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Published in |
Health and Quality of Life Outcomes, April 2012
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DOI | 10.1186/1477-7525-10-43 |
Pubmed ID | |
Authors |
Roxanna M Bendixen, Claudia Senesac, Donovan J Lott, Krista Vandenborne |
Abstract |
Duchenne muscular dystrophy (DMD) is characterized by muscle damage and progressive loss of muscle function in male children. DMD is one of the most devastating genetically linked neuromuscular diseases for which there is currently no cure. Most clinical studies for DMD utilize a standard protocol for measurement exploring pathophysiology, muscle strength and timed tasks. However, we propose that examining broader components of health as emphasized by the International Classification of Functioning, Disability and Health-Children and Youth Version (ICF-CY) may be of great value to children and their families, and important outcomes for future clinical trials. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
Unknown | 2 | 100% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 2 | 100% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
Spain | 1 | <1% |
Zambia | 1 | <1% |
Unknown | 297 | 99% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Student > Master | 58 | 19% |
Student > Bachelor | 46 | 15% |
Student > Ph. D. Student | 27 | 9% |
Student > Doctoral Student | 24 | 8% |
Researcher | 24 | 8% |
Other | 44 | 15% |
Unknown | 76 | 25% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 78 | 26% |
Nursing and Health Professions | 61 | 20% |
Psychology | 20 | 7% |
Sports and Recreations | 14 | 5% |
Social Sciences | 11 | 4% |
Other | 34 | 11% |
Unknown | 81 | 27% |