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X Demographics
Mendeley readers
| Title |
Transcending the Tragedy Discourse of Dementia: An Ethical Imperative for Promoting Selfhood, Meaningful Relationships, and Well-Being
|
|---|---|
| Published in |
The AMA Journal of Ethic, July 2017
|
| DOI | 10.1001/journalofethics.2017.19.7.msoc1-1707 |
| Pubmed ID | |
| Authors |
Peter Reed, Jennifer Carson, Zebbedia Gibb |
| Abstract |
Supporting people living with dementia in maintaining selfhood, relationships, and well-being requires seeing beyond the common negative focus on disability. Furthermore, prioritizing the person rather than the disease requires rejecting the tragedy discourse, which is the negative lens through which dementia is typically considered. In this paper, we highlight qualitative research on dementia involving people living with dementia as active participants. Recognizing that many people living with dementia remain capable of making decisions that affect their lives, we highlight a research-based approach to support known as "authentic partnerships" that includes people living with dementia as equal partners. We conclude by proposing eight beliefs to mobilize positive change in transcending the tragedy discourse of dementia, thereby opening a space for selfhood, relationships, and well-being. |
X Demographics
The data shown below were collected from the profiles of 97 X users who shared this research output. Click here to find out more about how the information was compiled.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| United States | 32 | 33% |
| United Kingdom | 8 | 8% |
| Spain | 4 | 4% |
| Australia | 2 | 2% |
| Canada | 2 | 2% |
| Ghana | 1 | 1% |
| Austria | 1 | 1% |
| Ireland | 1 | 1% |
| Mexico | 1 | 1% |
| Other | 5 | 5% |
| Unknown | 40 | 41% |
Demographic breakdown
| Type | Count | As % |
|---|---|---|
| Members of the public | 72 | 74% |
| Practitioners (doctors, other healthcare professionals) | 10 | 10% |
| Scientists | 9 | 9% |
| Science communicators (journalists, bloggers, editors) | 6 | 6% |
Mendeley readers
The data shown below were compiled from readership statistics for 35 Mendeley readers of this research output. Click here to see the associated Mendeley record.
Geographical breakdown
| Country | Count | As % |
|---|---|---|
| Unknown | 35 | 100% |
Demographic breakdown
| Readers by professional status | Count | As % |
|---|---|---|
| Student > Ph. D. Student | 7 | 20% |
| Student > Bachelor | 5 | 14% |
| Student > Master | 5 | 14% |
| Student > Doctoral Student | 4 | 11% |
| Researcher | 3 | 9% |
| Other | 3 | 9% |
| Unknown | 8 | 23% |
| Readers by discipline | Count | As % |
|---|---|---|
| Psychology | 8 | 23% |
| Social Sciences | 6 | 17% |
| Nursing and Health Professions | 5 | 14% |
| Neuroscience | 2 | 6% |
| Medicine and Dentistry | 2 | 6% |
| Other | 3 | 9% |
| Unknown | 9 | 26% |