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Transcending the Tragedy Discourse of Dementia: An Ethical Imperative for Promoting Selfhood, Meaningful Relationships, and Well-Being

Overview of attention for article published in The AMA Journal of Ethic, July 2017
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Mentioned by

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108 tweeters
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1 Facebook page

Citations

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11 Dimensions

Readers on

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31 Mendeley
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Title
Transcending the Tragedy Discourse of Dementia: An Ethical Imperative for Promoting Selfhood, Meaningful Relationships, and Well-Being
Published in
The AMA Journal of Ethic, July 2017
DOI 10.1001/journalofethics.2017.19.7.msoc1-1707
Pubmed ID
Abstract

Supporting people living with dementia in maintaining selfhood, relationships, and well-being requires seeing beyond the common negative focus on disability. Furthermore, prioritizing the person rather than the disease requires rejecting the tragedy discourse, which is the negative lens through which dementia is typically considered. In this paper, we highlight qualitative research on dementia involving people living with dementia as active participants. Recognizing that many people living with dementia remain capable of making decisions that affect their lives, we highlight a research-based approach to support known as "authentic partnerships" that includes people living with dementia as equal partners. We conclude by proposing eight beliefs to mobilize positive change in transcending the tragedy discourse of dementia, thereby opening a space for selfhood, relationships, and well-being.

Twitter Demographics

The data shown below were collected from the profiles of 108 tweeters who shared this research output. Click here to find out more about how the information was compiled.

Mendeley readers

The data shown below were compiled from readership statistics for 31 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 31 100%

Demographic breakdown

Readers by professional status Count As %
Student > Ph. D. Student 6 19%
Student > Bachelor 5 16%
Student > Master 5 16%
Student > Doctoral Student 4 13%
Lecturer > Senior Lecturer 2 6%
Other 3 10%
Unknown 6 19%
Readers by discipline Count As %
Psychology 8 26%
Nursing and Health Professions 5 16%
Social Sciences 5 16%
Medicine and Dentistry 2 6%
Computer Science 1 3%
Other 3 10%
Unknown 7 23%